Family Uncaged

Julia: When there are no answers

58 Comments 14 October 2012

Yes, they’ve checked everything. Viral foes. Cancer possibilities. Blood pressure fluctuations. Vitamin deficiencies. Neurological tests. Nothing, nothing, nothing.

It’s hard when you don’t know.

I am home for a moment. After a week without sleep (I couldn’t sleep in Haiti; fie on insomnia), I slept in my own bed and slept like a drunkard–deep and hard. I feel like a new woman today. Which is good because I will head to the hospital for what could be a longer stay. I’m packing my suitcase.

Her headaches got worse last night. She’s in pain.

I’d so appreciate prayers. Some thoughts:

  • More than anything, please pray that Julia would feel God’s presence in a tangible, nonforsaken way. I want her to know Jesus’ shepherd care, that He is near, and grieving and hurting alongside her.
  • Diagnosis. This is making me crazy with fear. We want to know why. We want to know what. We want to know how. We want to know when.
  • Finances. Not provision per se, but freedom from the fear that brings. I’m trying very hard not to think about it.
  • Sophie as she goes back to college today. It’s not easy to concentrate on school when your sister is in the hospital with an unknown diagnosis.
  • Aidan as he tries to navigate high school for the same reasons. He’s had a brutal schedule this week with band, homecoming (band again), and a band competition yesterday.
  • Patrick as he goes back to work and carries this on his shoulders.
  • Me as I stay by her side. Pray I would be the hands and feet and heart of Jesus. I also have a book release this week, which is such a minor thing, but the logistics of that and doing all the things (or rescheduling) is daunting to me. Also pray about malaria. I’m taking pills for it, and will continue to do so, but I did get bit a lot, and my immune system is shot right now.

I am grateful for:

  • Your amazing prayers and support. One note: I will not be able to respond individually to your emails. It’s just too overwhelming. I would imagine you’d understand.
  • Our Life Group at church who has gone out of their way to transport, pray, feed, and support. I feel their community like a healing salve. It’s humbling and beautiful, and it makes me cry right now. Lakepointe church, YOU ROCK.
  • Patrick’s job that provides for us.
  • A sense that we are being tested. I know that sounds really masochistic. But truly, I’ve been ruminating on suffering and why some folks seem to have more than others. Or how we thrive in the midst. I’ve come to the conclusion that trauma will either enlarge or diminish us. And I’m praying that we would enlarge, our hearts would break for people under similar circumstances. Even at the airport when I was weeping and losing phone battery, I saw this in action. The luggage guys let me use their outlet. And this dear young man shared how his dad had died and how hard it had been. I had a chance to empathize, and that blessed me so much. Though it’s not fun to feel others’ wounds (oh how it hurts), I know that Jesus did that to the best degree. And if we are to be more like Jesus, pain will have to biggify our hearts for the sake of others.
  • My bed. Oh it’s just so blessedly comfortable. Dear Bed, I will miss thee.
  • Hospital food that is not icky at all.
  • Julia continues to be conscious and alert. She is still Julia.
  • This strange, amazing feeling of peace, like many people are praying, and those prayers are keeping me from falling apart. I can’t describe it. It may be shock, but I can’t discount the thousands of prayers rattling the heavenlies on our behalf.

Thanks for reading this extremely long post. I’m not sure how often I’ll be able to post here, but this is where the updates will be. Instead of texting or emailing me for the latest, please check here first.

Also, I have several posts that are in the cue this week that are already written. Tomorrow it’ll be the post about incentives you’ll receive if you purchase my new book Everything. I wanted you to know ahead of time. It’s been in the cue a long time, and it will run. By no means does that mean I’m ignoring our very real situation. Actually, I’m grateful I had posts in the queue. It takes the pressure off.

Thank you for your prayers. It seems small to say that, but I sincerely, truly mean it. They are our oxygen.

Thankful for sleep,

Mary

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  • http://www.facebook.com/amanda.chance.58 Amanda Chance

    Hugs sweet mama and hug Julia for me , my heart breaks for you and your family. I cant even imagine what you must be feeling. You are an inspiration to me thankyou for being transparent in your struggles. I will be adding you permanently to my prayer list. May God bless you beyond your wildest dreams. May he restore your health and Julias from the top of your head to the bottom of your toes!

  • http://www.facebook.com/profile.php?id=686442200 Kristine McGuire

    I am praying for your sweet daughter, you, your family, and will continue to do so.

    Holy Lord – may You overshadow Julia with your peace, healing, and strength. Work through the doctors or deliver her from this affliction but may you receive all the glory for Your provision and grace. Uphold Mary, Patrick, Aiden, and Sophie as they bear this burden with Julia. We know that YOU are sovereign over all. In Jesus’ name, Amen.

  • http://www.facebook.com/jhannathompson Janice Hanna Thompson

    I wish I lived closer, sweet girl. Will fb and tweet about the book.

  • Allie Pleiter

    This reminds me of what one of my son’s doctors said about a “mystery pathogen” making him sick: “We don’t always need to know what it is to kill it. We only need to know that it’s gone.” May it be gone–identified or not–and soon!

  • ro elliott

    So very sorry…I am praying for your daughter and your family…May the God of all comfort be near…May wisdom abound to all the doctors…and may the Great Physician touch and heal your daughter. blessings~

  • Anne Peterson

    Lord, I come before you asking you to continue giving Mary your peace. Father, surround this whole family with your arms. Give wisdom to those who treat Julia. Bind the enemy, Lord, and all the taunts he will try. We trust you God. That you are sovereign. That you are ever present. That you can be with each member of this family, at work, at college, in high school and at the hospital, dispensing the grace needed. Lord. we thank you that you are not surprised by anything. We thank you for what you will bring out of all of this. I ask that You will be praised, and glorified. We love you Lord, and we know that you love Julia. God, help us to hold up our sister’s arms. In Jesus’ precious Holy name we pray. Amen

  • http://twitter.com/LoriARamsey Lori Ramsey

    Praying for your daughter and your family. God’s healing hand is on her and guides the doctors and nurses as they treat her. By Jesus’ stripes Julia is healed and restored.

  • http://www.freedom-connection.org Tammy Bunk

    Praying for you, Mary, your daughter and your entire family. Praying for peace and comfort that can be found in Him through our pain and the unknown. Praying for strength and healing. Standing with you, Mary.

  • TJ wilson

    what a gorgeous pic of Julia, that smile. Praying for comfort tonight from pain, good sleep, and a clear diagnosis. You are loved –

  • Lourdes Montes

    Praying that God give you the strength and guide you through this hard time.

  • http://www.facebook.com/profile.php?id=1075040827 Nancy Bouwens

    Mary- I continue to pray for you and your beautiful Julia. The unknown is so hard. God is good, He is faithful and He is true. I pray he will hold you tight in the midst of the storm in ways you can not comprehend.

    October 1st of 2011 my 27 year old son was in a terrible auto accident.
    January 30th of 2012 my 21 year old son was diagnosed with Guillan Barre syndrome
    May 20th of 2012 my 29 year old daughter pregnant with her 5th child experienced a devastating stroke.

    God is good. He is faithful and he is true. … in the midst of the storm.

    I know many prayed for us and our family in our storm and continue to do so as my daughter continues to work towards her recover and the birth of her baby in November. My boys are healed and whole.

    The texts and facebook messages we received from people around the world were life to my heart and a balm to my soul. Knowing we were not alone.

    This mama is praying throughout the day for you, your daughter your family and those who love you- for strength and peace and grace… and will continue to do so.

    Nancy Bouwens

  • Jen Ferguson

    Praying, Mary. Lord, you know beyond all things what is wrong and what needs healing. I pray that your presence would flood Julia’s room and her body, that you would be known above all else. May your Holy Spirit course through her like a gentle, healing river. May you be glorified through this.

  • http://www.facebook.com/people/Carla-Burke/1024456824 Carla Burke

    You and Julia and your whole family are in my prayers.

  • http://twitter.com/Sherrey_Meyer Sherrey Meyer

    Mary, faithful daughter of God, indeed we are all praying and He is in the midst of Julia’s illness, whatever it may be. My prayers are for answers, healing and rest for you all. If only I could reach out and hug you — consider yourself cyber-hugged. :)

  • http://sandraheskaking.com/ Sandra Heska King

    Stretching my arms all the way down to Texas and prayers rising with the rest.

  • Sharon O

    Praying for answers. Peace and rest for you all.

  • Kathy Krikorian

    Praying and have Group tonight praying….need food??? at home??? Groceries delivered?
    LOve you and Little sister…and Your son is amazing…
    Kathy

  • http://monicabrand.com/blog Monica

    praying. we love you, Mary. when you hurt, we hurt.

  • http://myfreshlybrewedlife.com/ Barbie

    I am praying hard for Julia! And peace for you my friend!

  • sherri

    Mary —
    I don’t know how I stumbled across you several years ago, but I have been blessed. You are so very transparent and such an encouargemennt to so many. I don’t know when or how or why or what but I do know WHO. Cast your cares, your FEARS on Him. He will provide. He will keep you in perfect peace. He WILL.. My prayers are with you for strength, continued peace that surpasses your understanding, a glorious, unfailing hope, an unshakeable trust in God’s sovereignty, and a perseverance to press on through this thing, whatever it is. For Juiia, a trust that doesn’t falther as she experiences God’s myserious ways, for the release of pain, strength to return to her body, for heavenly wisdom to rain down overwhelmingly now on the medical community that surrounds her – for God to give someone the answer and for them to boldly step forward with it, and for complete healing of your daughters body. Praying continually – sherri

  • Cherri Jenkins

    please ask them about guillain barre syndrome

    • http://www.facebook.com/profile.php?id=1075040827 Nancy Bouwens

      i agree.

    • http://www.facebook.com/profile.php?id=1075040827 Nancy Bouwens

      My son was diagnosed with this in January… after all else was ruled out. Symptoms sound similar. it is rare, it is ugly. it is treatable!! praying.

  • LauraLee

    I have tears streaming down my face. Just to hear your testimony of praises, being able to relate to the fear as a mother, etc.

    I know you have a life group, but if there is anything I can do for you here locally, I’m open to whatever need you have. Continuing to pray.

  • http://www.WhimsySmitten.com/ Cara Sexton

    <3

  • donna

    Prayers coming your way. He knows it all and has it all together. Cyber hugs…glad you were able to sleep!

  • http://www.tammyhelfrich.com/ Tammy Helfrich

    Still praying, Mary, and will pray specifically for these things. I believe you will enlarge and be an even bigger testimony to allowing Jesus to be your Everything. Sending hugs your way!

  • http://www.facebook.com/profile.php?id=666555285 Elisa Pulliam

    Glad for the update. I’ve been praying and asking God to meet all your needs in Christ Jesus!

  • Anette Acker

    Thank you for the update, Mary. I’m so glad you got some rest!

    Like many others, I am continually lifting up your family in prayer and fighting this battle alongside you. I know what you mean when you say that the prayers of fellow believers is your oxygen. I’ve been there when we’ve gone through crises with the children. Although the pain and fear is intense, the peace that comes from prayer is palpable. As you said, it’s hard to explain–but very real.

    Hugs and continued prayers from Rick and me, dear friend!

  • Julie Johnson

    praying, praying, praying.

  • Kelly Kurtanic

    I’ve lived this Mary … praying for you with empathy & love …

  • Elizabeth

    Praying for Julia.

  • Glenda Childers

    Sending love and prayers from Chicago.

  • Nan Jones

    Love you Mary. Thank you for the updates. I’m keeping you and yours in my prayers. {{{hugs}}}}

  • Zosha

    Father God we ask that you would bind Satan! This is your child and we know that after a life changing trip to Haiti, he wants more than anything to destroy. We do not accept this! Jesus you are the victor! And we are your precious ones. We claim your Word and promises. Bin Jesu’s name. Amen!

  • http://obtainingmercy.typepad.com/ Alesha Kay

    I know how hard it is to have a sick child in the hospital. I am praying that you can find a hospital chair/cot that is not TOO uncomfortable. I praying you (and Julia) can find one consistently yummy thing on the menu. And I’m praying that you will have internet service…it really helps to feel connected (plus you can listen to your own tunes!)

    Many prayers for an answer for Julia,
    Alesha

  • Lindalouise

    Praying for all of you Mary and all those concerns. My sweet granddaughter is a friend of Sophie’s at college. I just know she will be a comfort to her.

    • http://sandraheskaking.com/ Sandra Heska King

      I love how Love intertwines all of us!

  • Angela

    Praying still! I wonder if it will end up being a complicated migraine episode. So sorry for no answers! Understand I have struggled myself with this in my life. And everything is a powerful book! I know the enemy is threatened! It does nothing but point you to Christ the whole way through.

  • http://profiles.google.com/lucrecerbraxton Lucrecer Braxton

    I will be praying for Julia and your family.

  • http://twitter.com/TanyaDennis Tanya Dennis

    Thank you for the update. Mary, you, Julia and your entire family have been so heavy on my heart since hearing the news last week. I spent the weekend in PA with family, but kept checking twitter and facebook to stay in touch with YOUR family. You are precious and have not left my prayers. I continue to pray for all the things you mentioned here and more. GOD IS BIGGER. GOD IS GREATER. GOD IS GOOD. Huge hugs to you, my friend! I wish we were closer so that I could provide more tangible help, yet I trust in God whose arms have no end.

  • http://twitter.com/lensweet Leonard Sweet

    Just learned today of Julia. Abiding in prayer . . . . thx! for helping all of us know best how to pray

  • Keith L. Bell

    So that you won’t feel wrong or alone in mentioning your book at a time like this, just know that you don’t need to explain. You only have to apologize for mentioning this particular book if it’s title and purpose for being written means “nothing”.

    God bless you and the lives He is using Julia’s situation (and your book) to touch!

  • Joy

    Just came across your blog. I will definitely be praying for your daughter and the rest of your family.

  • Allison

    Continuing to lift u all up to the Healer and Knower of ALL things…

  • kathy mcneff

    Thank you Mary for updating. Peace and healing for Julia, comfort and strength for your family.

  • Heidi

    Praying. I know you said they checked for everything. Did they check for Typhus. There has been an outbreak. Spread by fleas. And all her symptoms seem to match what Typhus does to humans. Sorry, all of a sudden, I was praying for your daughter and next thing I know the word Typhus became the focal point. Otherwise I am praying for that you are seeking. So sorry this is happening. Not knowing and having to be patient for answers is very hard.

  • pastordt

    This is the hardest part – not knowing and being frightened. Praying for peace of mind, supernatural peace, over and above and around all the prayers you’ve listed here. Been here before, with our son when he was 14. That proved to be an idiopathic virus after months of tests and the very real likelihood of brain surgery. He is now 40, Mary. FORTY and a doctor himself. So – lean into these prayers of others. That’s literally how I survived that. I could not pray myself beyond groans and sighs, but I could literally feel the prayers of others holding me up. That’s our job, our calling as you walk this road. So stand on it. Stand on us as we stand together around you, leaning on the Everlasting Arms.

  • Robbie Iobst

    Praying for Julia and you and your family. Praying specifically Isaiah 41:10:

    Fear not, for I am with Julia. Be not dismayed for I am Julia’s God. I will strengthen Julia, yes I will help Julia. I will hold Julia in My Righteous Right Hand.

  • http://www.facebook.com/StephanieClaytonWrites Stephanie Clayton

    Praying for ya’ll!!!!!

  • Lynn Mosher

    Still standing in agreement with all your prayers.

  • Erin Bishop

    Mary, I’ve been praying for you
    and your family and thinking of you almost non-stop. I feel so empathetic
    because we had something similar happen to us.
    Last August our 7 year old son suddenly had back pain, a high fever and
    became listless. I took him to the E.R. expecting to be sent home. We ended up spending the next several days
    there as he underwent a myriad of blood and urine tests, x-rays, CT Scans, MRI’s
    and ultrasounds. His blood tests
    revealed some sort of infection, yet the doctor and his team were unable to
    identify what it was.

    We were released on a Saturday afternoon
    because his fever went down and there were still no answers. The doctor did a final blood test and sent us
    home. While I was out for an errand my
    husband called and said the blood test was back and the doctor wanted us to
    bring our son back immediately. I was
    panic stricken.

    That evening we still had no answers. A
    group of our friends, including our pastor and his wife came to visit and we
    all laid hands on our son, Luke, in prayer.
    As each of us prayed I heard the song “Let the Water’s Rise” by Mike’s
    Chair in the background.

    Less than an hour after our
    prayer time the nurse came in to check on Luke.
    His temperature was down. By the
    next morning his temperature was a blessed 98.6. The doctors and nurses were baffled. I was quick to point out that God performed a
    miracle and told him of the dozens and dozens of people who had been praying.

    We were released from the
    hospital the next day. To this day we
    have no idea what happened to Luke. You
    said you were grateful for the sense that you were being tested. That’s how I felt, too. Though I had no idea what was going on or what
    our future held, I felt honored that God chose our family to shine
    through.

    I pray that the Lord will reveal
    to the medical team what is going on in Julia’s body and that there will be a
    swift recovery. I pray for you and your
    husband and other kids that you will feel the peace that surpasses all understanding.

    Here is that song I
    mentioned. I pray that it brings you
    great comfort.

    http://www.youtube.com/watch?v=KIkQ7YVys_A

    Erin Bishop

  • Pam OBrien

    Oh, Mary. I prayed last night for your dear girl with a mama’s heart… will continue to lift her and your family up. Thanks for the update.

  • http://www.faithsquared.net/ Alizabeth Rasmussen

    Thank you for offering such specific ways we can pray for you and support you during this time. I’m on it!

  • http://www.facebook.com/pams.page18 Pam’s Page

    I’m so glad you are feeling G-d’s indescribable peace.

    “Do not fear, for I have redeemed you;
    I have summoned you by name; you are mine.
    2 When you pass through the waters,
    I will be with you;
    and when you pass through the rivers,
    they will not sweep over you.
    When you walk through the fire,
    you will not be burned;
    the flames will not set you ablaze.
    3 For I am the Lord your God,
    the Holy One of Israel, your Savior;
    I give Egypt for your ransom,
    Cush and Seba in your stead.
    4 Since you are precious and honored in my sight,
    and because I love you,
    I will give people in exchange for you,
    nations in exchange for your life.
    5 Do not be afraid, for I am with you;
    I will bring your children from the east
    and gather you from the west.
    6 I will say to the north, ‘Give them up!’
    and to the south, ‘Do not hold them back.’
    Bring my sons from afar
    and my daughters from the ends of the earth—
    7 everyone who is called by my name,
    whom I created for my glory,
    whom I formed and made.”

  • http://twitter.com/LivingOneHanded Ryan Haack

    Praying for you all, Mary. What a whirlwind couple of weeks!

  • Mark Randall

    Praying!

  • http://twitter.com/FraniePalaschuk Frances Palaschuk

    Bless you for taking the time to update us. Wishing you all the best during this difficult time.

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