Julia: another night hospitalized

37 Comments 14 October 2012

I’ve never been one to adore hospitals, and Julia isn’t either. She continues to ask when she gets to go home. I wish I knew. But I’m hoping tomorrow.

Tomorrow we’re getting back her extensive labwork. I’m hoping this will give us some answers.

Today the headaches were awful (highest pain on the scale). It’s excruciating to watch your child moan and weep. I truly want to take it all from her in a flash. I’d much rather hurt than have her hurt.

I received this picture today from someone who was giving a talk in Alaska. Apparently I made it into the presentation, a quote from Everything. The timing is uncanny. My words coming back to haunt me in the best possible way. Faith words. Good words. God words.

Cue circumstantial artsy music here.

I’m reminded of this sweet verse:

I would have despaired unless I had believed that I would see the goodness of the LORD In the land of the living. Psalm 27:13.

God is good. So good. He’s surrounded us with amazing friends. He loves us. He saw the pain of humanity, and it grieved Him so much that He willingly took it all on. He carried our sorrows and grief. He bore the weight.

Yet it was our weaknesses he carried;
it was our sorrows^[a] that weighed him down.
And we thought his troubles were a punishment from God,
a punishment for his own sins!
⁵But he was pierced for our rebellion,
crushed for our sins.
He was beaten so we could be whole.
He was whipped so we could be healed.
⁶All of us, like sheep, have strayed away.
We have left God’s paths to follow our own.
Yet the Lord laid on him
the sins of us all. Isaiah 53:4-6

I understand a tiny bit. Seeing Julia like this makes me want to hop into her skin, eradicate the pain, steal it from her, and bear it. And He did that for every single one of us.

Julia is skyping with a friend. A giggle escapes her, a rare thing these past two days. I watched her friend visit today, become overwhelmed. She hugged Julia, crying. The tears came to me then. Watching empathy does that to a girl.

So it’s off to “bed” (term used loosely) hoping tomorrow brings an answer. Thank you for the beautiful, humbling gift of your prayers. I am not able to respond to emails right now, but I want you to know I read each one.

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Ruth Axtell

Praying and believing for her healing.
http://goinswriter.com/ Jeff Goins

Praying.
http://twitter.com/chadrallen Chad R. Allen

Mary, I’m praying for Julia, the doctors and nurses, you, and your whole family. I’ve prayed this several times, from the Book of Common Prayer:

Heavenly Father, giver of life and health: Comfort
and relieve your sick servants, and give your power
of healing to those who minister to their needs,
that those for whom our prayers are offered may be
strengthened in their weakness and have confidence
in your loving care; through Jesus Christ our Lord,
who lives and reigns with you and the Holy Spirit,
one God, now and forever.
http://ayearinthespirituallife.blogspot.com/ Dayna Renee Hackett Bickham

I don’t know if this will help, but I thought I should send it to you. My husband has struggled with this for a long time. They may not be related, but since we have looked for answers for the better part of 20 years, I could not pass by without sharing.

http://dfw.cbslocal.com/2011/07/15/texas-doctors-performing-groundbreaking-migraine-surgery/
http://www.chronicdailyheadache.com/index.html and
http://mydaughtersheadache.com/

I am praying. I am not saying these are what is happening, just trying to help.
http://www.facebook.com/charlene.mccauley3 Charlene McCauley

Praying for Julie during my fast tomorrow!
http://www.isthatyoulord.blogspot.com Shelly Faust

Continuing to pray…standing and believing with you.
LauraLee

Words fail me, but still praying.
Elizabeth Stewart

Praying for your sweet girl and for either a supernatural healing or a speedy diagnosis and solution.
http://www.KariDay.com/ Kari Day

Still praying for you all.
Kathy Schwanke

Praying that the Lord will relieve Julia’s pain and grant wisdom to her caregivers. That He will hold you up and carry you close.
For I am the Lord, your God,
who takes hold of your right hand
and says to you, Do not fear;
I will help you.
14 Do not be afraid, O worm Jacob,
O little Israel,
for I myself will help you,” declares the Lord,
your Redeemer, the Holy One of Israel. Psalm 41:13-14
http://www.facebook.com/cathy.kendall1 Cathy Kendall

I’m praying for you and your family, too! We’ve never met but you have encouraged me so many times, Mary. I know the pain of watching your child suffer and not getting a quick diagnosis. I’m praying Julia’s doctor’s will figure it out, that God will heal her, that He will give you His peace that passed understanding. Mostly I pray that you will all be abundantly aware of His presence in the midst of this trial.
pastordt

Thanks for the update. Continuing to pray and trust God for healing – and for answers, too.
http://www.facebook.com/sharon.odegaard Sharon Odegaard

Praying for you and your family, sweet Mary — for peace and patience as you wait for the test results, for rest for Julia tonight, and for healing for her. You champion prayer for everyone who asks you, so it’s a privilege to lift up you and your family now.
Jennifer Hudson Taylor

Mary, Still praying for Julia and your family. In addition to her seizures, my 15 yr old suffers from migraines, and we’ve discovered a soft ice pack on the back of her neck delivers wonders for the pain–even if the pain is somewhere else on the head. Your updates bring back many memories, but please know that so many people have your family bathed in prayer. God will never forsake her and you being by her side is the next best thing to being in her skin. From one mother’s heart to another–God’s footprints are carrying you in the sand.
Lindalouise

Praying for answers; praying for rest and peace; praying with gratitude for healing.
http://www.facebook.com/people/Angela-Richter/1632533801 Angela Richter

We are praying for your sweet daughter and for you all! We are thankful that your in the hands of the Great Physician!
Mary Hampton

You have all been in my heart and prayers since I saw the first announcement about Julia. Praying you get answers with the test results and you both rest well tonight (I know how hard that is in the hospital–why is the middle of the night the time they need to take temperatures, etc?!). Your faith in the midst of this is inspiring.
Brynn

Continued prayers – for Julia, her medical team, and you and your family, Mary. Asking God to wrap you all in his peace and give you rest, and that he’d grant relief from the pain and a definitive diagnosis for Julia.
http://twitter.com/lifesurrendered Michele-Lyn

You are teaching us here, by your faith and your trust. You are indeed touching the world with Heaven’s touch. May God cause all these things to work together for good, as His promise is true to those who love Him and are called according to His purpose. Rom 8:28… May you find rest.
Athol

I’m still praying for Julia, Mary.
Leslie

Prayers for His abundant peace and mercy for Julia.
http://cherylbarker.blogspot.com/ Cheryl Barker

Still praying, Mary!
http://hissongtomeshalom.blogspot.com/ Mandy

Praying, Mary and Julia!
http://twitter.com/DanneHotchkiss D’Anne Hotchkiss

Mary, my prayers are for you, Julia, your family, Julia’s caregivers in particular that they may find answers soon and know what to do with the information.
soulstops

Praying for you and Julia and your family. So grateful God is giving you His Words back to you…thanks for the update.
Laura Hodges Poole

Praying for you and Julia. God grows us in ways that are mighty painful sometimes. I hope Julia gets relief soon. (I recognize my friend Ginny in that photo from Alaska. Didn’t realize we had a mutual friend.)
http://juliesunne.com/ Julie Sunne

Love these verses and your amazing strength and faith, Mary. Continuing to intercede for you and your family.
Anita

Praying for rest for both of you tonight and for complete healing for Julia!
nas1497

May you both rest well tonight knowing you are in His arms and wake to answers. My prayers for you and the docs and nurses are raised tonight
http://www.redemptionsbeauty.com/ Shelly Miller

Just got caught up on your posts about Julia and storming the gates on her behalf. I am probably stating the obvious here, but this is some heavy spiritual warfare. Sending prayers and love your way.
Diane Stortz

Mary, I am glad you can be there for Julia tonight. I spent two nights in a small room in the ER with my then-20-year-old, 2000 miles from home, when she came down with viral meningitis and we had to wait for a room at the small community hospital where we were. I am praying now for the needs you mention here to all be met by our awesome God.
hopejem

Oh the chair/bed. I have had nightmares that it is eating me. I pray that you will be able to rest well regardless of the awkward sleeping position. Praying for strength, rest and peace.
ambermcginty

We continue to pray for Julia & your family. Interesting–even the sermon at my church this morning had this same message.
http://sandraheskaking.com/ Sandra Heska King

God bumps here. Prayers on my pillow tonight.
http://twitter.com/rickssmith Rick Smith

Continuing to pray for Julia, you and your family. The only thing that comes to me now has probably been shared with you a thousand times over the past few days… Philippiams 4:6-7

6 Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. 7 And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.

Grace and Peace to your family…
http://twitter.com/Sherrey_Meyer Sherrey Meyer

Never fear that we’re praying in our home for your family and your Julia. As a mom, my mama heart knows how you would take the pain and hurt from her in a heartbeat! It’s what we mamas feel for our children. As you attempt to rest tonight, imagine God’s loving arms about both of you healing all pain, hurt and restlessness. Sleep well!
http://www.amyinwanderland.com/ Amy in Wanderland

God is so faithful to bring back to mind the words He gave us long before we’ve had the chance to realize how much we’ll be needing them. Love and prayers–

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